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Ehlers-Danlos Syndrome support in Ivanhoe, VIC

Ehlers-danlos syndrome support in Ivanhoe, VIC

Compare local providers and the support types that usually matter for ehlers-danlos syndrome. Skip the generic directory listings, get a real shortlist.

1 providers with ehlers-danlos syndrome experience · Updated 21 July 2026

For ehlers-danlos syndrome

  • 1 providers with ehlers-danlos syndrome experience in Ivanhoe
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Best Ehlers-Danlos Syndrome specialist near me

1 experienced with Ehlers-Danlos Syndrome · 9 other registered providers·How we chose these

Trusted provider Supports ehlers-danlos syndrome on Carevo
1

Ivanhoe, VIC and 40 othersAlso servesAberfoyle Park, SA · Adelaide, SA · Adelaide Airport, SA · Ballarat East, VIC · Balwyn, VIC · Balwyn North, VIC · Bendigo, VIC · Box Hill, VIC · Broadmeadows, VIC · Brunswick, VIC · Camberwell, VIC · Chadstone, VIC · +28 more · National provider

  • 25+ families connected
  • Specialises in Support coordination, Allied health

Apex Health Professionals is among the highest-ranked NDIS registered providers in Ivanhoe, Victoria in our data. They are most often contacted for support coordination and allied health. They have a track record of following through on more than 40 enquiries from families who connected through Carevo. They have supported participants with ehlers-danlos syndrome.

How this listing is sourced

NDIS coverage15 groupsNDIS registration groupsInnovative Community Participation · Early Childhood Supports · Group and Centre Based Activities · Assistance to access and/or maintain employment and/or education · Assistance with daily life tasks in a group or shared living arrangement · Support Coordination · Daily Personal Activities · Assistance with travel/transport arrangements · Specialist Behaviour Support · Therapeutic Supports · Home Modifications · Assistance in Coordinating or Managing Life Stages, Transitions and Supports · Household tasks · Participation in community/social and civic activities · Development of daily living and life skills
0422702255

Other registered providers in Ivanhoe

Registered in Ivanhoe with no demonstrated Ehlers-Danlos Syndrome track record on Carevo — listed for completeness, not as Ehlers-Danlos Syndrome specialists.

Trusted provider
2

Ivanhoe, VIC and 15 othersAlso servesBalwyn, VIC · Box Hill, VIC · Brunswick, VIC · Burwood East, VIC · Camberwell, VIC · Clifton Hill, VIC · Doncaster, VIC · Hawthorn, VIC · Heidelberg, VIC · Kew, VIC · Malvern, VIC · Melbourne, VIC · +3 more · Regional provider

  • 5+ families connected
  • Specialises in Allied health

Based in Ivanhoe, Victoria, Moving Healthcare is an NDIS registered provider. Most enquiries to them come from participants directly. Allied health are among their most-requested supports. They support both NDIS and aged care funding.

How this listing is sourced

NDIS coverage1 groupNDIS registration groupsTherapeutic Supports
1300803899
3

Ivanhoe, VIC and 19 othersAlso servesBundoora, VIC · Craigieburn, VIC · Doncaster, VIC · Epping, VIC · Fawkner, VIC · Heidelberg, VIC · Lalor, VIC · Mernda, VIC · Mill Park, VIC · Moonee Ponds, VIC · Pascoe Vale, VIC · Preston, VIC · +7 more · Regional provider

  • 5+ families connected
  • Specialises in Cleaning, Personal care

Based in Ivanhoe, Victoria, Cosmos Divine Care is an NDIS registered provider. Most enquiries to them come from participants directly. Cleaning and personal care are among their most-requested supports.

How this listing is sourced

NDIS coverage11 groupsNDIS registration groupsGroup and Centre Based Activities · Innovative Community Participation · Development of daily living and life skills · Household tasks · Participation in community/social and civic activities · Assistance to access and/or maintain employment and/or education · Assistance in Coordinating or Managing Life Stages, Transitions and Supports · Daily Personal Activities · Assistance with travel/transport arrangements · Community nursing care for high needs · Assistance with daily life tasks in a group or shared living arrangement
1800953997
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4

Ivanhoe, VIC and 9 othersAlso servesAlphington, VIC · Balwyn, VIC · Camberwell, VIC · Canterbury, VIC · Deepdene, VIC · Fairfield, VIC · Hawthorn, VIC · Kew, VIC · Kew East, VIC · Hyperlocal provider

  • Specialises in Allied health

Head2toe Physiotherapy, Podiatry & Clinical Pilates Kew is an NDIS registered and aged care approved provider in Ivanhoe, Victoria. Families most often connect with them for allied health. Most enquiries to them come from families and carers. They focus closely on their local area.

How this listing is sourced

NDIS coverage1 groupNDIS registration groupsTherapeutic Supports
(03) 9326 0168
5

Ivanhoe, VIC and 7 othersAlso servesAlphington, VIC · Balwyn, VIC · Balwyn North, VIC · Fairfield, VIC · Hawthorn, VIC · Kew, VIC · Kew East, VIC · Hyperlocal provider

  • Fast responder, usually replies within an hour
  • Specialises in Allied health

SAEXP - Exercise Physiology is an NDIS registered provider in Ivanhoe, Victoria. Families most often connect with them for allied health. They focus closely on their local area. Active on Carevo in the past week.

How this listing is sourced

NDIS coverage2 groupsNDIS registration groupsTherapeutic Supports · Exercise Physiology and Physical Wellbeing Activities
(03) 9996 9599
6

Ivanhoe, VIC and 502 othersAlso servesAirport West, VIC · Albert Park, VIC · Albion, VIC · Alexandria, NSW · Allambie Heights, NSW · Allawah, NSW · Altona, VIC · Altona Meadows, VIC · Altona North, VIC · Ardeer, VIC · Armadale, VIC · Arncliffe, NSW · +490 more · National provider

  • 10+ families connected
  • Specialises in Personal care, Cleaning, Transport

Based in Ivanhoe, Victoria, Permalink Support Services is an NDIS registered provider. Personal care and cleaning are among their most-requested supports. They have a track record of following through on more than 10 enquiries from families who connected through Carevo. Registered across 17 NDIS support categories, including daily living skills, Assistance to access and/or maintain employment and/or education and Innovative Community Participation.

How this listing is sourced

NDIS coverage17 groupsNDIS registration groupsDevelopment of daily living and life skills · Assistance to access and/or maintain employment and/or education · Innovative Community Participation · Specialist Disability Accommodation · Community nursing care for high needs · Therapeutic Supports · Assistance in Coordinating or Managing Life Stages, Transitions and Supports · Early Childhood Supports · Household tasks · Assistance with daily life tasks in a group or shared living arrangement · High Intensity Daily Personal Activities · Daily Personal Activities · Assistance with travel/transport arrangements · Accommodation/Tenancy Assistance · Participation in community/social and civic activities · Support Coordination · Group and Centre Based Activities
Availability Open now · 6AM-10PM
1300 737 625
  • Specialises in Therapy, Allied Health, Physiotherapy

Priority Health Care Services is an NDIS registered provider in Ivanhoe, Victoria.

How this listing is sourced

NDIS coverage3 groupsNDIS registration groupsAssistive Products for Personal Care and Safety · Personal Mobility Equipment · Therapeutic Supports
8

Ivanhoe, VIC and 2 othersAlso servesMount Waverley, VIC · St Kilda, VIC

  • Specialises in Physiotherapy, Therapy, Allied Health

Neurological Rehabilitation Group is an NDIS registered provider in Ivanhoe, Victoria. Registered across 5 NDIS support categories, including Assistive Products for Personal Care and Safety, Assistive Equipment for Recreation and Personal Mobility Equipment. Active on Carevo in the past week.

How this listing is sourced

NDIS coverage5 groupsNDIS registration groupsAssistive Products for Personal Care and Safety · Assistive Equipment for Recreation · Personal Mobility Equipment · Therapeutic Supports · Exercise Physiology and Physical Wellbeing Activities
0398037755
Trusted provider
9

Ivanhoe, VIC and 49 othersAlso servesBroadmeadows, VIC · Brookfield, VIC · Bulleen, VIC · Bundoora, VIC · Coburg, VIC · Coburg North, VIC · Collingwood, VIC · Doncaster, VIC · Doncaster East, VIC · Donvale, VIC · Doreen, VIC · Epping, VIC · +37 more · Regional provider

  • 10+ families connected
  • Specialises in Cleaning, Gardening, Personal care

Based in Ivanhoe, Victoria, High Power Cleaning Services is an NDIS registered provider. Cleaning and gardening are among their most-requested supports. They have a track record of following through on over a dozen enquiries from families who connected through Carevo. Most enquiries to them come from families and carers.

How this listing is sourced

NDIS coverage1 groupNDIS registration groupsHousehold tasks
0401398705
10

Ivanhoe, VIC and 38 othersAlso servesAvondale Heights, VIC · Ballarat East, VIC · Barwon Heads, VIC · Blackburn, VIC · Box Hill South, VIC · Bright, VIC · Campbellfield, VIC · Carnegie, VIC · Caulfield North, VIC · Coburg, VIC · Cranbourne West, VIC · Dandenong, VIC · +26 more · State-wide provider

  • Fast responder, usually replies within an hour
  • Specialises in Nursing, Occupational therapy

Wellness Aid works across 8 NDIS support categories in Ivanhoe, Victoria. They operate across Victoria. They are most often contacted for nursing and occupational therapy. They support both NDIS and aged care funding.

How this listing is sourced

NDIS coverage8 groupsNDIS registration groupsGroup and Centre Based Activities · Assistance with daily life tasks in a group or shared living arrangement · Household tasks · Community nursing care for high needs · Assistance with travel/transport arrangements · Development of daily living and life skills · Daily Personal Activities · Participation in community/social and civic activities
0451061211

How we rank providers

Rankings in Ivanhoe are based on real outcomes between providers and families on our platform. They are recalculated daily and cannot be purchased or influenced by advertising.

  • How this list is built. Providers shown here offer physiotherapy, occupational therapy, allied health, personal care, support work, and nursing, the support types most relevant to ehlers-danlos syndrome. They are then ranked by demonstrated experience with ehlers-danlos syndrome, providers who have actively claimed and supported ehlers-danlos syndrome referrals rank above those who only list it as a capability.
  • Outcomes with families. We measure what happens after a family contacts a provider. Providers where families report positive outcomes rank higher. Multiple signals are weighted across a rolling window.
  • Condition-specific track record. Providers who have accepted and worked with ehlers-danlos syndrome referrals on Carevo rank above those who only list the condition as a capability. We weight providers using their demonstrated experience with this cohort, not self-declared specialisations.
  • Service match. Providers are ranked by how closely their registered services and capabilities match what you are searching for.
  • Registration and compliance. NDIS registered and government-approved aged care providers are weighted for meeting quality and safeguards standards.
  • Local presence. Providers confirmed in Ivanhoe rank above those covering only the broader region.

What "Trusted" means. The Trusted badge is awarded to providers with a consistent record of positive outcomes with families on our platform. It is based on multiple behavioural signals and family feedback, and it cannot be purchased.

10

providers in Ivanhoe

32,111

providers nationally

How we calculate provider numbers

What people with Ehlers-Danlos Syndrome in Ivanhoe usually need help with

Ehlers-Danlos syndrome is a group of hereditary connective tissue disorders causing joint hypermobility, skin fragility, chronic pain, and frequent dislocations. People with hypermobile or classical EDS may qualify for NDIS when their functional limitations are permanent and substantial. Physiotherapy, occupational therapy, and personal care are commonly funded supports for managing the daily impacts of EDS.

For physical and mobility conditions, the best starting point is usually identifying the main needs (therapy, personal care, equipment, home mods), then comparing local providers whose staff have the right manual handling training and condition-specific experience.

What people usually compare locally

  • • Whether support workers are trained in safe transfers, hoists, and mobility equipment
  • • Access to local physiotherapy, OT, and assistive technology assessment services
  • • Morning and evening routine availability and staff reliability in the area
  • • Experience with the specific physical condition, not just general physical support

Language support in Ivanhoe

Ivanhoe has a large Mandarin-speaking community (5.2% of residents), so finding ehlers-danlos syndrome support in a shared language matters here. These are the main languages spoken at home locally (ABS Census 2021). When you get matched, ask providers which of their staff speak your language and whether they can keep that worker as your regular. Interpreters are free through TIS National for NDIS appointments, and My Aged Care can arrange them for aged care assessments.

Speaker counts are persons using the language at home in this postcode. Source: Australian Bureau of Statistics, Census of Population and Housing 2021 (table G13). Carevo connects families with providers and does not deliver care itself.

Pain management Physiotherapy Occupational therapy Exercise physiology Psychology Assistive technology Nursing support

Services and providers to compare first in Ivanhoe

For physical and mobility conditions, physiotherapy, assistive technology, and personal care are usually the first services to compare. Focus on providers with experience in your specific condition rather than general disability support. Use the service links below to pressure-test provider fit, not just to browse every option in the area.

The Ehlers-Danlos Syndrome provider network on Carevo

15 providers on Carevo have supported people with ehlers-danlos syndrome through real matched requests.12 are registered NDIS providers. Matching is based on real provider history, not self-described claims.

Supports they provide

  • • Support workers
  • • Personal care
  • • Allied health
  • • Nursing

Where providers are

Providers experienced with ehlers-danlos syndrome are listed in more than 180 suburbs across Queensland, New South Wales, South Australia, Western Australia, and other states.

Often supported alongside

Providers who support ehlers-danlos syndrome most often also have experience with Psychosocial Disability, ADHD, OCD, Prader-Willi Syndrome, and Autism.

About Ivanhoe, VIC

Population

12,171

Local government area

Banyule (City)

Providers listed

10

Ivanhoe sits within the Banyule (City) local government area in VIC. Providers serving this area often cover surrounding suburbs in the same LGA, so it is worth checking neighbouring areas if you cannot find an exact match.

How to check a provider's credentials

Carevo lists the registration details a provider reports and links you to the official Australian registers so you can confirm them yourself. Here is what each listing shows and where to check it. A listing on Carevo is not an endorsement.

NDIS registration

Listings show whether a provider reports being NDIS registered. You can confirm a provider's current registration and approved support types yourself on the NDIS Commission's public provider register.

Source: NDIS Quality and Safeguards Commission

Aged care approval

Listings show aged care approval where it is recorded. You can check a provider's current approval and the services they deliver on the Australian Government's My Aged Care find a provider service.

Source: My Aged Care (Department of Health and Aged Care)

ABN you can check

Most listings include the provider's Australian Business Number, shown on the profile. You can look it up on the Australian Business Register to confirm the business is registered and active.

Source: Australian Business Register

Complaints process

If you have a concern about any provider, you can lodge a complaint with the NDIS Commission or the Aged Care Quality and Safety Commission at any time. We also accept complaints via our own channel.

Source: NDIS Commission / Aged Care Commission

Care Services Available in Ivanhoe

Provider counts by service type in Ivanhoe

* Services commonly accessed for this condition

What happens after you request support in Ivanhoe

1. Map physical support needs

Work out whether the main priorities are therapy, personal care, equipment and home modifications, or a combination that needs coordinating across providers.

2. Compare condition-specific providers

Look for providers whose therapists and support workers have experience with the specific physical condition, not just general mobility support. Compare equipment capability and manual handling training.

3. Confirm practical logistics

Ask about morning/evening routine availability, how transfers and personal care are handled, equipment maintenance, and whether the provider can cover weekends or overnight if needed.

For NDIS participants with physical conditions, confirm whether the provider can coordinate across therapy, personal care, and assistive technology, and whether support workers are trained in the manual handling and equipment relevant to your condition.

Frequently Asked Questions

Does Ehlers-Danlos syndrome qualify for NDIS in Ivanhoe?

EDS can qualify for NDIS when it causes permanent and substantial functional limitations, which is common in moderate to severe cases involving chronic pain, frequent dislocations, and reduced mobility. Providing detailed functional evidence from treating specialists and allied health professionals strengthens an NDIS access request in Ivanhoe. Carevo connects EDS participants in Northern Melbourne with support coordinators experienced in complex connective tissue conditions.

What physiotherapy supports are available through NDIS for EDS in Ivanhoe?

NDIS-funded physiotherapy for EDS in Ivanhoe focuses on joint stabilisation, pain management, proprioception training, and safe movement to reduce dislocation risk. Physiotherapists with EDS experience use low-impact approaches that avoid overstretching hypermobile joints. Carevo helps participants in Northern Melbourne find physiotherapists who understand EDS and can deliver home-based or clinic sessions.

Can NDIS fund assistive technology for joint protection with EDS in Ivanhoe?

Yes, NDIS can fund assistive technology for people with EDS in Ivanhoe including bracing, orthotics, mobility aids, and home modification equipment to reduce joint injury risk. An occupational therapist or physiotherapist assessment is required to justify these items as reasonable and necessary. Carevo connects participants in Northern Melbourne with OTs who specialise in assistive technology assessments for hypermobility conditions.

How does NDIS support pain management for EDS in Ivanhoe?

NDIS does not directly fund pain medication but supports in Ivanhoe such as occupational therapy, exercise physiology, physiotherapy, and psychology can help participants manage chronic EDS pain and improve quality of life. A well-structured plan addresses both physical management and psychological wellbeing. Carevo lists allied health and psychology providers in Northern Melbourne who work with chronic pain and hypermobility disorders.

Can I get a support worker to help with daily tasks affected by EDS in Ivanhoe?

NDIS support workers can assist people with EDS in Ivanhoe with personal care, household tasks, and community access on days when pain or joint instability limits independence. Flexible rostering is important to accommodate EDS symptom variability. Carevo connects participants across Northern Melbourne with support workers who can adapt to the fluctuating needs associated with EDS.

Understanding Ehlers-Danlos Syndrome (EDS)

Ehlers-Danlos syndrome (EDS) is a group of inherited connective tissue disorders affecting collagen, the main structural protein in the body. It affects an estimated 1 in 5,000 Australians, though hypermobile EDS (the most common type) is likely significantly underdiagnosed. EDS causes joint hypermobility, chronic pain, frequent dislocations and subluxations, fragile skin, fatigue, and autonomic dysfunction. The most common type, hypermobile EDS (hEDS), is characterised by generalised joint hypermobility, chronic pain, and fatigue. Other types (vascular, classical, kyphoscoliotic) have additional features including fragile blood vessels, elastic skin, and spinal curvature. EDS is a multi-system condition that affects far more than joints. Many people also experience gastrointestinal problems, mast cell activation, postural orthostatic tachycardia syndrome (POTS), and cranio-cervical instability. The NDIS funds support for people whose EDS causes permanent and significant functional impairment.

How ehlers-danlos syndrome affects daily life

EDS affects daily life through chronic pain, joint instability, and fatigue. Joints can dislocate or sublux during ordinary activities like reaching for a shelf, turning a doorknob, or walking on uneven ground. Pain is constant and fluctuates in severity. Fatigue is pervasive and not proportional to activity level. Autonomic dysfunction (POTS) causes dizziness, fainting, and rapid heart rate on standing, which limits mobility and independence. Gastrointestinal symptoms including nausea, reflux, and motility problems affect eating and nutrition. Many people with EDS also experience brain fog, anxiety, and depression. The condition is often dismissed or minimised by health professionals because people with EDS "look fine," which creates additional psychological burden.

What to look for in a provider

Good EDS providers understand that hypermobility management is different from standard physiotherapy for injury. Ask whether their physiotherapists have experience with hypermobility and joint stabilisation (not stretching), whether they understand POTS and autonomic management, and how they approach chronic pain without pushing into flare-ups. Red flags include physiotherapists who prescribe stretching for hypermobile joints (which makes them worse), providers unfamiliar with the multi-system nature of EDS, or those who dismiss the condition as "just being flexible." A multidisciplinary approach that addresses pain, fatigue, joint stability, and autonomic function together is most effective.

How to access funding

EDS is assessed under the NDIS List B, the list of permanent conditions whose functional impact varies, so access requires evidence of permanent and significant functional impairment. A rheumatologist, geneticist, or specialist physician provides the diagnosis, and functional assessments from physiotherapists and OTs document the daily impact. NDIS access for EDS can be challenging because the condition is often invisible and poorly understood. Detailed functional evidence showing the impact on mobility, personal care, and daily activities is essential. Plans are reviewed annually.

Sources: NDIS Access operational guideline, List B (permanent conditions, variable functional capacity) · NDIS Our Guidelines, List A (conditions likely to meet the disability requirements)

Need help with NDIS for Ehlers-Danlos Syndrome? A support coordinator can help you find the right providers and get the most from your plan. Find support coordinators in Ivanhoe

Funding and costs for ehlers-danlos syndrome support in Ivanhoe

Lower

$10,000

per year

Typical

$35,000

per year

Higher

$100,000+

per year

Plan size depends on the severity of joint instability, pain, autonomic dysfunction, and the extent of daily support needed. People with vascular EDS or multiple system involvement tend to have larger plans.

Illustrative ranges only. An individual plan is set by the NDIA on assessed need, not by diagnosis, and varies widely. Pricing basis: NDIS Pricing Schedule 2026-27.

Physiotherapy sessions cost $193-$234/hr under the NDIS. Custom orthotics and bracing cost $200-$3,000+ per joint. Compression garments for POTS cost $100-$500.

Figures are indicative and based on the current NDIS Price Guide and published Home Care Package rates. Actual costs depend on your plan, provider, and location.

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