Find tuberous sclerosis support in Australia
Compare providers and the support types that usually matter for tuberous sclerosis across Australia. Skip the generic directory listings, get a real shortlist.
For tuberous sclerosis
- 3 providers with tuberous sclerosis experience
- Matched to the support types that fit tuberous sclerosis
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Best Tuberous Sclerosis specialists in Australia
3 experienced with Tuberous Sclerosis · 7 other registered providers·How we chose these
Point Cook, VIC · State-wide provider
Specialises in Personal care · Household tasks · Transport
Based in Point Cook, Victoria, Salme Quality Care Providers is an NDIS registered provider. Personal care and household tasks are among their most-requested supports. They have supported participants with tuberous sclerosis. Support coordinators often connect their participants with them.
How this listing is sourced
- Registered with the NDIS Quality & Safeguards Commission
- Business address on file
Melbourne, VIC and 20 othersAlso servesAdelaide, SA · Ballarat East, VIC · Carnegie, VIC · Coburg, VIC · Cranbourne West, VIC · Dandenong, VIC · Footscray, VIC · Geelong, VIC · Hawthorn, VIC · North Melbourne, VIC · Ocean Grove, VIC · Richmond, VIC · +8 more · National provider
Specialises in Physiotherapy · Behaviour support
Enhanced Ability Behaviour Support is an NDIS registered provider serving Melbourne, Victoria. Most enquiries to them come from families and carers. They have supported participants with tuberous sclerosis. They are most often contacted for physiotherapy and behaviour support.
How this listing is sourced
Clayton South, VIC and 501 othersAlso servesAirport West, VIC · Albert Park, VIC · Albion, VIC · Alexandria, NSW · Allambie Heights, NSW · Allawah, NSW · Altona, VIC · Altona Meadows, VIC · Altona North, VIC · Ardeer, VIC · Armadale, VIC · Arncliffe, NSW · +489 more · National provider
Specialises in Personal care · Domestic assistance · Transport
Permalink Support Services is an NDIS registered provider serving Clayton South, Victoria. Most enquiries to them come from participants directly. They have a track record of following through on more than 10 enquiries from families who connected through Carevo. They are most often contacted for personal care and domestic assistance.
How this listing is sourced
- Registered with the NDIS Quality & Safeguards Commission
- Business address on file
Other registered providers in Australia
Registered in Australia with no demonstrated Tuberous Sclerosis track record on Carevo — listed for completeness, not as Tuberous Sclerosis specialists.
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Craigieburn, VIC and 13 othersAlso servesBallarat North, VIC · Broadmeadows, VIC · Cranbourne, VIC · Epping, VIC · Geelong, VIC · Kilmore, VIC · Melbourne, VIC · Melton, VIC · Mernda, VIC · South Morang, VIC · Sunbury, VIC · Sunshine North, VIC · +1 more · State-wide provider
Specialises in Personal care · Domestic assistance · Meal preparation
Miracle Health Services is an NDIS registered and aged care approved provider in Craigieburn, Victoria. They have a track record of following through on more than 50 enquiries from families who connected through Carevo. Families most often connect with them for personal care and domestic assistance. Most enquiries to them come from participants directly.
How this listing is sourced
- Registered with the NDIS Quality & Safeguards Commission
- Approved Aged Care provider (Department of Health)
- Business address on file
- Team includes Cleaner, Disability Support Worker, Registered Nurse
South Perth, WA and 24 othersAlso servesAlbany, WA · Armadale, WA · Balga, WA · Bibra Lake, WA · Bunbury, WA · Busselton, WA · Canning Vale, WA · Cannington, WA · Clarkson, WA · Cockburn Central, WA · Collie, WA · Ellenbrook, WA · +12 more · State-wide provider
Specialises in Personal care · Domestic assistance · Nursing
Helping Solutions is an NDIS registered provider serving South Perth, Western Australia. Most enquiries to them come from families and carers. They have a track record of following through on more than 40 enquiries from families who connected through Carevo. They are most often contacted for personal care and domestic assistance.
How this listing is sourced
- Registered with the NDIS Quality & Safeguards Commission
- Business address on file
- Team includes Disability Support Worker, Registered Nurse
Boondall, QLD and 30 othersAlso servesAlderley, QLD · Ashmore, QLD · Benowa, QLD · Browns Plains, QLD · Bundaberg West, QLD · Burpengary, QLD · Cairns City, QLD · Cleveland, QLD · Coolum Beach, QLD · Coomera, QLD · Corinda, QLD · Everton Park, QLD · +18 more · National provider
Specialises in Personal care · Therapy · Transport
Mapple Care is an NDIS registered provider in Boondall, Queensland. They have a track record of following through on more than 50 enquiries from families who connected through Carevo. Families most often connect with them for personal care and therapy. Registered across 17 NDIS support categories, including shared living support, daily personal care and household tasks.
How this listing is sourced
- Registered with the NDIS Quality & Safeguards Commission
- Business address on file
Malaga, WA and 56 othersAlso servesAlbany, WA · Armadale, WA · Baldivis, WA · Bassendean, WA · Bayswater, WA · Belmont, WA · Beverley, WA · Boddington, WA · Brookdale, WA · Brookton, WA · Broome, WA · Bunbury, WA · +44 more · National provider
Specialises in Personal care · Support coordination · Domestic assistance
Innovative Care is an NDIS registered provider in Malaga, Western Australia. Families most often connect with them for personal care and support coordination. Registered across 19 NDIS support categories, including transport assistance, community nursing and shared living support. They support both NDIS and aged care funding.
How this listing is sourced
- Registered with the NDIS Quality & Safeguards Commission
- Business address on file
- Team includes Social Worker
St Albans, VIC and 74 othersAlso servesAirport West, VIC · Albion, VIC · Altona North, VIC · Ardeer, VIC · Ascot Vale, VIC · Ballarat East, VIC · Bendigo, VIC · Bentleigh East, VIC · Broadmeadows, VIC · Brooklyn, VIC · Brunswick, VIC · Bundoora, VIC · +62 more · State-wide provider
Specialises in Therapy · Personal care · Allied health
Based in St Albans, Victoria, Clover Leaf Sanctuary is an NDIS registered provider. Registered across 11 NDIS support categories, including shared living support, Innovative Community Participation and transport assistance. Therapy and personal care are among their most-requested supports. They support both NDIS and aged care funding.
How this listing is sourced
- Registered with the NDIS Quality & Safeguards Commission
- Business address on file
Yallambie, VIC and 6 othersAlso servesDoreen, VIC · Epping, VIC · Geelong, VIC · Melbourne, VIC · South Morang, VIC · St Kilda, VIC
Specialises in Personal Care · Support Workers · Social Support
Aligned Assist is an NDIS registered provider serving Yallambie, Victoria. Active on Carevo in the past week. They have a track record of following through on more than 25 enquiries from families who connected through Carevo.
How this listing is sourced
- Registered with the NDIS Quality & Safeguards Commission
- Business address on file
North Lakes, QLD and 76 othersAlso servesAcacia Ridge, QLD · Bald Hills, QLD · Bellbird Park, QLD · Booval, QLD · Bracken Ridge, QLD · Brassall, QLD · Bray Park, QLD · Brisbane City, QLD · Browns Plains, QLD · Bundamba, QLD · Burpengary, QLD · Burpengary East, QLD · +64 more · State-wide provider
Specialises in Therapy · Allied health · Personal care
Based in North Lakes, Queensland, Complete Healthcare Connect is an NDIS registered provider. Therapy and allied health are among their most-requested supports. They have a track record of following through on more than 30 enquiries from families who connected through Carevo. Registered across 15 NDIS support categories, including high intensity personal care, shared living support and transport assistance.
How this listing is sourced
- Registered with the NDIS Quality & Safeguards Commission
- Business address on file
- Team includes Developmental Educators, Disability Support Worker, Welfare Worker
How we rank providers
Rankings in Australia are based on real outcomes between providers and families on our platform. They are recalculated daily and cannot be purchased or influenced by advertising.
- How this list is built. Providers shown here offer nursing, allied health, psychology, support work, occupational therapy, personal care, and therapy, the support types most relevant to tuberous sclerosis. They are then ranked by demonstrated experience with tuberous sclerosis, providers who have actively claimed and supported tuberous sclerosis referrals rank above those who only list it as a capability.
- Outcomes with families. We measure what happens after a family contacts a provider. Providers where families report positive outcomes rank higher. Multiple signals are weighted across a rolling window.
- Condition-specific track record. Providers who have accepted and worked with tuberous sclerosis referrals on Carevo rank above those who only list the condition as a capability. We weight providers using their demonstrated experience with this cohort, not self-declared specialisations.
- Service match. Providers are ranked by how closely their registered services and capabilities match what you are searching for.
- Registration and compliance. NDIS registered and government-approved aged care providers are weighted for meeting quality and safeguards standards.
- Local presence. Providers confirmed in Australia rank above those covering only the broader region.
What "Trusted" means. The Trusted badge is awarded to providers with a consistent record of positive outcomes with families on our platform. It is based on multiple behavioural signals and family feedback, and it cannot be purchased.
28,527
providers in Australia
What support people with Tuberous Sclerosis usually need
Tuberous sclerosis complex is a rare genetic condition causing non-cancerous tumours to grow in the brain and other organs, often leading to epilepsy, intellectual disability, autism spectrum features, and skin abnormalities. TSC qualifies for NDIS as a permanent condition with wide-ranging functional impacts. Supports commonly include behaviour support, occupational therapy, nursing, and personal care. The right mix of support depends on age, goals, living situation, and how much day-to-day impact tuberous sclerosis has.
Routines and daily living
Families usually start by comparing providers who can reduce friction in the hardest parts of the day: getting ready, eating, toileting, transitions, community access, and building independence without escalating stress at home.
Therapy and skill building
The highest-value comparisons are usually speech pathology, occupational therapy, behaviour support, and early intervention. The question is less 'who offers therapy' and more 'who can work on communication, regulation, and practical function in the same direction.'
Choosing the right fit
Families usually need providers who understand sensory load, communication differences, school or childcare transitions, and how to build trust slowly. A generic disability provider is rarely enough if rapport and consistency are poor.
Services and providers to compare first for Tuberous Sclerosis
For developmental conditions, compare the services that remove the biggest daily bottlenecks first: communication, regulation, behaviour, routines, and participation. The strongest providers usually coordinate across therapy and support work instead of leaving families to stitch everything together.
What usually separates a strong provider from a generic one
- • Experience with developmental and neurodivergent conditions, not just general disability support
- • Whether therapists can turn assessment goals into practical routines at home, school, or in the community
- • Staff consistency and how well workers build rapport over time rather than changing faces every few weeks
- • Flexibility to adjust support during key transitions such as starting school, adolescence, or moving toward independent living
The Tuberous Sclerosis provider network on Carevo
3 providers on Carevo have supported people with tuberous sclerosis through real matched requests.All are registered NDIS providers. Matching is based on real provider history, not self-described claims.
Supports they provide
- • Therapy
Where providers are
Providers experienced with tuberous sclerosis are listed in more than 500 suburbs across Victoria, South Australia, New South Wales.
Often supported alongside
Providers who support tuberous sclerosis most often also have experience with ADHD.
Where tuberous sclerosis support is available
Providers listed
28,527
States with coverage
5
How to check a provider's credentials
Carevo lists the registration details a provider reports and links you to the official Australian registers so you can confirm them yourself. Here is what each listing shows and where to check it. A listing on Carevo is not an endorsement.
NDIS registration
Listings show whether a provider reports being NDIS registered. You can confirm a provider's current registration and approved support types yourself on the NDIS Commission's public provider register.
Source: NDIS Quality and Safeguards CommissionAged care approval
Listings show aged care approval where it is recorded. You can check a provider's current approval and the services they deliver on the Australian Government's My Aged Care find a provider service.
Source: My Aged Care (Department of Health and Aged Care)ABN you can check
Most listings include the provider's Australian Business Number, shown on the profile. You can look it up on the Australian Business Register to confirm the business is registered and active.
Source: Australian Business RegisterComplaints process
If you have a concern about any provider, you can lodge a complaint with the NDIS Commission or the Aged Care Quality and Safety Commission at any time. We also accept complaints via our own channel.
Source: NDIS Commission / Aged Care CommissionWhat happens after you request support
The next step is usually to narrow the services that matter most, shortlist two or three realistic providers, and ask practical questions about fit, availability, staff continuity, and how support will work in real life.
1. Map current barriers
Identify whether the main gaps are in communication, daily routines, behaviour, social participation, or independence at home.
2. Compare therapy and support options
Look at providers who offer the right therapy mix and support workers who understand how to work with developmental conditions in practice.
3. Check rapport and consistency
Ask about staff continuity, how therapists adapt to the person's communication style, and whether you can trial before committing.
For NDIS participants with developmental conditions, it also helps to confirm whether the provider can coordinate across therapies (e.g. OT and speech working together on the same goals) and whether support workers are trained in the specific condition.
Understanding Tuberous Sclerosis Complex (TSC)
Tuberous sclerosis complex (TSC) is a genetic condition causing benign tumours (tubers) to grow in the brain, kidneys, heart, lungs, eyes, and skin. It affects approximately 1 in 6,000 births worldwide. The severity varies enormously: some people have minimal symptoms, while others experience seizures, intellectual disability, autism, behavioural challenges, and organ complications. Brain tubers cause epilepsy in approximately 85% of people with TSC, and this epilepsy is often drug-resistant and difficult to manage. Intellectual disability ranges from none to severe. Autism co-occurs in 40-50% of cases. Renal angiomyolipomas can cause kidney problems. Cardiac rhabdomyomas are common in infancy but often resolve. Because TSC affects multiple organ systems, coordinated medical and disability support is essential. The NDIS funds the disability support component while the health system manages the medical monitoring and treatment.
How tuberous sclerosis affects daily life
TSC affects daily life differently depending on which organs are involved and how severely. For many people, seizures are the most disabling feature, affecting safety, independence, driving, and daily routine. Intellectual disability and autism, when present, affect communication, learning, and social participation. Behavioural challenges including aggression, self-injury, and sleep disturbance are common, particularly when seizures are poorly controlled. Skin manifestations (facial angiofibromas) can affect self-esteem. Renal monitoring requires regular imaging. The combination of seizures, cognitive difficulties, and behavioural challenges means many people with TSC need significant daily support, while others with milder presentations live relatively independently.
What to look for in a provider
Good TSC providers understand the multi-system nature of the condition and do not focus on one aspect in isolation. Ask whether they can manage seizures confidently, whether their workers understand the relationship between seizure control and behaviour, and whether they coordinate with the person's neurologist and other specialists. Red flags include providers who are not comfortable with seizure management, who do not connect behavioural challenges to seizure activity or brain involvement, or who are unfamiliar with the monitoring schedule required for kidney and other organ involvement.
How to access funding
Tuberous sclerosis complex is on the NDIS List B, meaning a confirmed diagnosis is recognised as a permanent condition but evidence of how it affects everyday functioning is generally required to confirm access. Plans are reviewed annually. The complex multi-system nature of TSC means that specialist support coordination is recommended to manage the interface between NDIS supports, neurology, nephrology, dermatology, and other specialist services. The Tuberous Sclerosis Australia association can provide guidance on NDIS planning.
Sources: NDIS Our Guidelines: List B conditions likely to result in permanent impairment · AIHW People with disability in Australia
Funding and costs for tuberous sclerosis support
Lower
$15,000
per year
Typical
$60,000
per year
Higher
$200,000+
per year
Plan size depends on seizure severity, intellectual disability level, behavioural complexity, and whether 24/7 support or SIL is needed. People with drug-resistant epilepsy and significant behavioural challenges tend to have larger plans.
Illustrative ranges only — an individual plan is set by the NDIA on assessed need, not by diagnosis, and varies widely. Pricing basis: NDIS Pricing Arrangements and Price Limits 2025-26.
Common funding categories
Seizure management equipment costs $200-$2,000. Allied health sessions cost $193-$234/hr under the NDIS. Behaviour support plans cost $2,000-$5,000 for development and review.
Figures are indicative and based on the current NDIS Price Guide and published Home Care Package rates. Actual costs depend on your plan, provider, and location.
Check the Eligibility
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Frequently Asked Questions
Does tuberous sclerosis complex qualify for NDIS in Australia?
Yes, tuberous sclerosis complex is a permanent genetic condition and almost always meets NDIS access criteria due to its impacts on neurological function, learning, and daily living. People with TSC in Australia can access a wide range of supports depending on how the condition affects them individually. Carevo connects participants and families in your area with providers experienced in rare genetic conditions and epilepsy.
What NDIS supports are available for epilepsy management in tuberous sclerosis in Australia?
NDIS can fund nursing support for seizure monitoring and medication management, behaviour support where seizures affect behaviour, and assistive technology such as seizure alert devices for TSC participants in Australia. Support workers trained in epilepsy first aid are also important. Carevo connects participants in your area with nursing and support worker providers who have epilepsy management experience.
How does NDIS support children with tuberous sclerosis and autism features in Australia?
Children with TSC who also present with autism features in Australia can access NDIS-funded behaviour support, OT, speech pathology, and early intervention that addresses both conditions together. This integrated approach is more effective than treating each diagnosis separately. Carevo connects families in your area with practitioners experienced in the overlap between TSC, epilepsy, and autism spectrum presentations.
Can NDIS fund specialist accommodation or supported living for adults with tuberous sclerosis in Australia?
Adults with TSC who require high levels of support may be eligible for NDIS-funded supported independent living or specialist disability accommodation in Australia. Eligibility depends on the level of daily support required and individual functional assessment. Carevo connects participants and families in your area with SIL and accommodation providers familiar with complex neurological conditions.
What behaviour support strategies work for tuberous sclerosis in Australia?
Behaviour support for TSC in Australia is delivered by registered practitioners who understand the neurological basis of behaviour in this condition, developing evidence-based positive behaviour support plans. Strategies are tailored to the individual and account for seizure activity, sensory needs, and communication level. Carevo connects participants in your area with behaviour support practitioners who work with rare neurological and genetic conditions.
Popular local support pages for Tuberous Sclerosis
Use these pages to compare local providers, check which services are most relevant in each area, and widen your shortlist if the first suburb does not have the right fit.
Find tuberous sclerosis providers near you
Top suburbs by number of available providers.