Find huntington's disease support in Australia
Compare providers and the support types that usually matter for huntington's disease across Australia. Skip the generic directory listings, get a real shortlist.
For huntington's disease
- 19 providers with huntington's disease experience
- Matched to the support types that fit huntington's disease
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Best Huntington's Disease specialists in Australia
10 experienced with Huntington's Disease·How we chose these
Burpengary East, QLD and 29 othersAlso servesBellmere, QLD · Bribie Island North, QLD · Bridgeman Downs, QLD · Brighton, QLD · Brisbane City, QLD · Caboolture, QLD · Caloundra, QLD · Caloundra West, QLD · Carina, QLD · Carina Heights, QLD · Carindale, QLD · Chermside, QLD · +17 more · State-wide provider
Specialises in Community access · Personal care · Nursing
Holistic NDIS Care is an NDIS registered provider in Burpengary East, Queensland. They have a track record of following through on more than 40 enquiries from families who connected through Carevo. Families who connected with them through Carevo have consistently reported positive outcomes. They have supported participants with huntington's disease.
How this listing is sourced
- Registered with the NDIS Quality & Safeguards Commission
- Business address on file
Wilsonton Heights, QLD and 31 othersAlso servesAdelaide, SA · Albany Creek, QLD · Alexandra Hills, QLD · Birkdale, QLD · Caboolture, QLD · Canberra Airport, ACT · Capalaba, QLD · Carindale, QLD · Collinsville, QLD · East Brisbane, QLD · Hope Island, QLD · Ipswich, QLD · +19 more · National provider
Specialises in Personal care · Transport · Domestic assistance
Pursue Services works across 9 NDIS support categories in Wilsonton Heights, Queensland. They are most often contacted for personal care and transport. They have a track record of following through on more than 25 enquiries from families who connected through Carevo. They have supported participants with huntington's disease.
How this listing is sourced
- Registered with the NDIS Quality & Safeguards Commission
- Business address on file
Toowoomba City, QLD and 2 othersAlso servesRedcliffe, QLD · South Brisbane, QLD · State-wide provider
Specialises in Community access · Personal care · Nursing
Based in Toowoomba City, Queensland, Infinite Possibilities Disability Solutions is an NDIS registered provider. Community access and personal care are among their most-requested supports. They have a track record of following through on more than 10 enquiries from families who connected through Carevo. Support coordinators often connect their participants with them.
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Toowoomba City, QLD and 2 othersAlso servesDalby, QLD · Kingaroy, QLD · National provider
Specialises in Personal care · Transport · Community access
Unique Minds Consultancy works across 7 NDIS support categories in Toowoomba City, Queensland. Most enquiries to them come from families and carers. They have a track record of following through on more than 10 enquiries from families who connected through Carevo. They are most often contacted for personal care and transport.
How this listing is sourced
- Registered with the NDIS Quality & Safeguards Commission
- Business address on file
Leppington, NSW and 4 othersAlso servesBankstown, NSW · Belmore, NSW · Liverpool, NSW · Parramatta, NSW · State-wide provider
Specialises in Allied health · Therapy
Based in Leppington, New South Wales, Revive Motion is an NDIS registered provider. Most enquiries to them come from participants directly. Allied health and therapy are among their most-requested supports. They operate across New South Wales.
How this listing is sourced
- Registered with the NDIS Quality & Safeguards Commission
- Business address on file
Toowoomba City, QLD and 4 othersAlso servesAllora, QLD · Clifton, QLD · Crows Nest, QLD · Gatton, QLD · Hyperlocal provider
Specialises in Personal care · Therapy · Behaviour support
Community Nurses is an NDIS registered provider in Toowoomba City, Queensland. Families most often connect with them for personal care and therapy. Most enquiries to them come from families and carers. They support both NDIS and aged care funding.
How this listing is sourced
- Registered with the NDIS Quality & Safeguards Commission
- Business address on file
Keysborough, VIC and 16 othersAlso servesBentleigh, VIC · Bentleigh East, VIC · Blacktown, NSW · Bondi, NSW · Burwood, VIC · Chatswood, NSW · Cranbourne, VIC · Dandenong, VIC · Doncaster, VIC · Melbourne, VIC · Pakenham, VIC · Paramatta, SA · +4 more · National provider
Specialises in Therapy · Allied health
ASI Physiology, Therapy & Support is an NDIS registered provider in Keysborough, Victoria. They have a track record of following through on more than 15 enquiries from families who connected through Carevo. Families most often connect with them for therapy and allied health. They support both NDIS and aged care funding.
How this listing is sourced
- Registered with the NDIS Quality & Safeguards Commission
- Business address on file
Harris Park, NSW and 5 othersAlso servesAuburn, NSW · Bass Hill, NSW · Gladesville, NSW · Riverstone, NSW · Ryde, NSW · State-wide provider
Specialises in Allied health · Therapy · Transport
Sydney Gentle Care works across 18 NDIS support categories in Harris Park, New South Wales. They operate across New South Wales. They have a track record of following through on more than 25 enquiries from families who connected through Carevo. They are most often contacted for allied health and therapy.
How this listing is sourced
- Registered with the NDIS Quality & Safeguards Commission
- Business address on file
Toowoomba City, QLD and 6 othersAlso servesAllora, QLD · Dalby, QLD · Gatton, QLD · Ipswich, QLD · Springfield, QLD · Stanthorpe, QLD · State-wide provider
Specialises in Personal care · Community access · Domestic assistance
Rawrss is an NDIS registered provider serving Toowoomba City, Queensland. They operate across Queensland. They are most often contacted for personal care and community access. Most enquiries to them come from participants directly.
How this listing is sourced
- Registered with the NDIS Quality & Safeguards Commission
- Business address on file
St Albans Park, VIC and 1 otherAlso servesGeelong, VIC · State-wide provider
Specialises in Physiotherapy · Personal care · Domestic assistance
Based in St Albans Park, Victoria, Nursing Excellence is an NDIS registered provider. Registered across 11 NDIS support categories, including household tasks, community participation and Innovative Community Participation. Physiotherapy and personal care are among their most-requested supports. They operate across Victoria.
How this listing is sourced
- Registered with the NDIS Quality & Safeguards Commission
- Business address on file
How we rank providers
Rankings in Australia are based on real outcomes between providers and families on our platform. They are recalculated daily and cannot be purchased or influenced by advertising.
- How this list is built. Providers shown here offer therapy, allied health, physiotherapy, occupational therapy, psychology, nursing, personal care, and support work, the support types most relevant to huntington's disease. They are then ranked by demonstrated experience with huntington's disease, providers who have actively claimed and supported huntington's disease referrals rank above those who only list it as a capability.
- Outcomes with families. We measure what happens after a family contacts a provider. Providers where families report positive outcomes rank higher. Multiple signals are weighted across a rolling window.
- Condition-specific track record. Providers who have accepted and worked with huntington's disease referrals on Carevo rank above those who only list the condition as a capability. We weight providers using their demonstrated experience with this cohort, not self-declared specialisations.
- Service match. Providers are ranked by how closely their registered services and capabilities match what you are searching for.
- Registration and compliance. NDIS registered and government-approved aged care providers are weighted for meeting quality and safeguards standards.
- Local presence. Providers confirmed in Australia rank above those covering only the broader region.
What "Trusted" means. The Trusted badge is awarded to providers with a consistent record of positive outcomes with families on our platform. It is based on multiple behavioural signals and family feedback, and it cannot be purchased.
28,460
providers in Australia
What support people with Huntington's Disease usually need
Huntington's disease is a hereditary neurological condition that causes progressive deterioration of nerve cells in the brain, affecting movement, cognition, and mental health. NDIS participants with Huntington's disease can access physiotherapy, speech pathology, psychology, and personal care as the condition progresses. Planning ahead with support coordination is particularly important for Huntington's disease given the progressive nature of the condition. The right mix of support depends on age, goals, living situation, and how much day-to-day impact huntington's disease has.
Daily care and safety
Most families start by comparing providers for prompting and supervision, personal care, meal support, medication routines, and ways to reduce wandering, falls, confusion, or late-day agitation without escalating distress.
Maintaining function and engagement
The highest-value comparisons are usually OT, physio, speech pathology for swallowing or communication, nursing, and respite. Good providers focus on preserving function and reducing stress for both the person and the family, not just filling roster hours.
Choosing the right fit
Families usually need dementia-trained staff who can communicate calmly, notice changes early, and keep family informed. Generic personal care is often not enough once behaviour, sleep disruption, or confusion become part of the picture.
Services and providers to compare first for Huntington's Disease
For cognitive and neurological conditions, compare the providers who can coordinate therapy, personal care, and supervision as function changes over time. Progressive conditions expose weak handovers quickly, so continuity matters as much as credentials.
What usually separates a strong provider from a generic one
- • Staff training in dementia-specific care, including managing confusion, agitation, and sundowning
- • How the provider communicates with family about changes in condition and care adjustments
- • Experience with progressive conditions where support needs increase over time
- • Whether they can coordinate across personal care, nursing, and allied health as needs change
The Huntington's Disease provider network on Carevo
19 providers on Carevo have supported people with huntington's disease through real matched requests.18 are registered NDIS providers. Matching is based on real provider history, not self-described claims.
Supports they provide
- • Therapy
- • Support workers
- • Personal care
- • Nursing
- • Allied health
Where providers are
Providers experienced with huntington's disease are listed in more than 270 suburbs across New South Wales, Queensland, Victoria, South Australia, and other states.
Often supported alongside
Providers who support huntington's disease most often also have experience with Autism, Vision Impairment, Amputation, Post-Stroke Care, and Age-Related Vision Loss.
Where huntington's disease support is available
Providers listed
28,460
States with coverage
5
How to check a provider's credentials
Carevo lists the registration details a provider reports and links you to the official Australian registers so you can confirm them yourself. Here is what each listing shows and where to check it. A listing on Carevo is not an endorsement.
NDIS registration
Listings show whether a provider reports being NDIS registered. You can confirm a provider's current registration and approved support types yourself on the NDIS Commission's public provider register.
Source: NDIS Quality and Safeguards CommissionAged care approval
Listings show aged care approval where it is recorded. You can check a provider's current approval and the services they deliver on the Australian Government's My Aged Care find a provider service.
Source: My Aged Care (Department of Health and Aged Care)ABN you can check
Most listings include the provider's Australian Business Number, shown on the profile. You can look it up on the Australian Business Register to confirm the business is registered and active.
Source: Australian Business RegisterComplaints process
If you have a concern about any provider, you can lodge a complaint with the NDIS Commission or the Aged Care Quality and Safety Commission at any time. We also accept complaints via our own channel.
Source: NDIS Commission / Aged Care CommissionWhat happens after you request support
The next step is usually to narrow the services that matter most, shortlist two or three realistic providers, and ask practical questions about fit, availability, staff continuity, and how support will work in real life.
1. Assess the current stage
Work out whether the main needs are supervision and prompting, hands-on personal care, behaviour management, or a combination that changes throughout the day.
2. Compare experienced providers
Look at providers whose staff have dementia-specific training and experience with progressive conditions. Compare how they manage care transitions as needs increase.
3. Plan for progression
Ask how the provider handles increasing care needs, overnight support, and coordination with medical teams. Confirm whether they can scale up without switching providers.
For NDIS participants with progressive cognitive conditions, confirm whether the provider can increase support as the condition progresses and how they coordinate with neurologists or specialist teams.
Understanding Huntington's Disease (HD)
Huntington's disease is a progressive genetic neurological condition caused by an expanded CAG repeat in the huntingtin gene. It affects approximately 8.9 per 100,000 people in Australia, or around 2,400 Australians (AIHW, 2024). Huntington's causes a combination of movement disorders (chorea, dystonia, balance problems), cognitive decline, and psychiatric symptoms including depression, irritability, apathy, and sometimes psychosis. Symptoms typically begin between ages 30 and 50 and progress over 15-25 years. The disease affects the whole family: the genetic nature means children of an affected parent have a 50% chance of inheriting the gene. Predictive genetic testing is available but carries significant psychological implications. The NDIS supports people with Huntington's through physiotherapy, personal care, speech therapy, psychology, and specialist support coordination. Because the disease is progressive, proactive planning for future needs is more effective than waiting for each new decline before requesting additional support.
How huntington's disease affects daily life
Huntington's disease affects daily life across three domains simultaneously. Involuntary movements (chorea) make eating, writing, walking, and handling objects difficult and exhausting. Cognitive decline affects planning, decision-making, multitasking, and eventually basic comprehension. Psychiatric symptoms including depression, irritability, impulsivity, and apathy change the person's personality and strain relationships. Swallowing difficulties increase as the disease progresses, creating aspiration and choking risks. Weight loss is common because chorea burns calories while swallowing problems reduce intake. Communication becomes increasingly difficult. For families, watching a loved one lose physical control, cognitive ability, and personality over many years is one of the hardest aspects of the condition.
What to look for in a provider
Good Huntington's providers understand all three aspects of the condition: movement, cognition, and behaviour. Ask whether their staff have specific Huntington's training, how they manage chorea during personal care, and whether they can adapt their approach as cognitive decline progresses. Red flags include providers who only address the physical symptoms without supporting the psychiatric and cognitive dimensions, who do not know about choking and aspiration risks, or who are unfamiliar with the disease trajectory and fail to plan ahead. Providers connected with Huntington's state organisations tend to have better access to specialist training and advice.
How to access funding
Huntington's disease is on the NDIS List A, meaning a confirmed genetic diagnosis or clinical diagnosis provides automatic NDIS access. Plans are reviewed annually but can be reviewed more frequently as the disease progresses. Specialist support coordination is highly recommended due to the complex health, disability, and genetic counselling interface. Huntington's Queensland, Huntington's NSW/ACT, and other state organisations provide NDIS guidance and support.
Sources: AIHW, Huntington's disease in Australia (2024) · NDIS, List A conditions likely to meet the disability requirements
Funding and costs for huntington's disease support
Lower
$25,000
per year
Typical
$80,000
per year
Higher
$250,000+
per year
Plans escalate as the disease progresses. Early-stage plans may focus on therapy and psychology. Mid-stage plans add personal care and behaviour support. Late-stage plans include full-time care, nursing, and specialised equipment.
Illustrative ranges only — an individual plan is set by the NDIA on assessed need, not by diagnosis, and varies widely. Pricing basis: NDIS Pricing Arrangements and Price Limits 2025-26.
Common funding categories
Allied health sessions cost $193-$234/hr under the NDIS. Personal care for people with advanced Huntington's often requires two workers for safe transfers, which doubles the hourly cost.
Figures are indicative and based on the current NDIS Price Guide and published Home Care Package rates. Actual costs depend on your plan, provider, and location.
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Frequently Asked Questions
What NDIS supports help people with Huntington's disease at home in Australia?
NDIS participants with Huntington's disease in Australia can access physiotherapy, occupational therapy, speech pathology for swallowing and communication, personal care, and support workers as the condition progresses. Carevo connects people and families in your area with providers experienced in neurodegenerative conditions.
How does Huntington's disease progress and how will my NDIS supports change in Australia?
Huntington's disease progresses through early, middle, and late stages with increasing physical, cognitive, and psychiatric support needs. NDIS plans in Australia are reviewed as needs change. Carevo connects you with specialist support coordination providers in your area who can help plan ahead and coordinate supports across multiple stages.
What mental health and psychology support is available for Huntington's disease in Australia?
Depression, anxiety, and behavioural changes are common in Huntington's disease. NDIS-funded psychologists and counsellors in Australia can provide support for the person and their family. Carevo lists psychology and counselling providers in your area experienced in working with people with neurodegenerative conditions.
What speech pathology support is available for Huntington's disease in Australia?
Speech pathologists who work with Huntington's disease in Australia address communication changes, dysarthria, and swallowing difficulties as the condition progresses. Early engagement with speech pathology helps establish communication strategies before significant deterioration. Carevo lists speech pathology providers in your area with experience in progressive neurological conditions.
Can I access personal care support at home for Huntington's disease in Australia?
Yes. As Huntington's disease progresses, NDIS-funded personal care workers in Australia can assist with bathing, dressing, meal preparation, and mobility. Workers experienced in HD understand the specific physical and behavioural aspects of the condition. Carevo connects you with personal care providers in your area who work with people with progressive neurological conditions.
Popular local support pages for Huntington's Disease
Use these pages to compare local providers, check which services are most relevant in each area, and widen your shortlist if the first suburb does not have the right fit.
Find huntington's disease providers near you
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