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Ehlers-Danlos Syndrome support in New South Wales

Ehlers-Danlos (EDS) & Hypermobility Support in New South Wales

Compare NDIS providers supporting people with ehlers-danlos syndrome across New South Wales. Ranked by real outcomes with families, not who pays for placement.

9478 providers across New South Wales · Updated 22 July 2026

For ehlers-danlos syndrome in New South Wales

  • 9478 providers across New South Wales
  • Matched to the support types that fit ehlers-danlos syndrome
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Best Ehlers-Danlos Syndrome specialists near me

10 experienced with Ehlers-Danlos Syndrome·How we chose these

Trusted provider Specialist in Ehlers-Danlos Syndrome
1

Leppington, NSW and 5 othersAlso servesBankstown, NSW · Belmore, NSW · Central Coast, NSW · Liverpool, NSW · Parramatta, NSW · State-wide provider

  • 5+ families connected
  • Specialises in Allied health

Revive Motion is among the highest-ranked NDIS registered providers in New South Wales, New South Wales in our data. Most enquiries to them come from participants directly. Participants often connect with them for ehlers-danlos syndrome support. They are most often contacted for allied health.

How this listing is sourced

NDIS coverage8 groupsNDIS registration groupsPersonal Mobility Equipment · Assistance with travel/transport arrangements · Assistive Products for Personal Care and Safety · Therapeutic Supports · Innovative Community Participation · Household tasks · Communication and Information Equipment · Assistive Products for Household Tasks
0432236431
Trusted provider Supports ehlers-danlos syndrome on Carevo
2

Parramatta, NSW and 117 othersAlso servesAbbotsford, NSW · Albert Park, VIC · Alexandria, NSW · Annandale, NSW · Arncliffe, NSW · Ashfield, NSW · Auburn, NSW · Balmain, NSW · Bankstown, NSW · Baulkham Hills, NSW · Beaconsfield, NSW · Belfield, NSW · +105 more · National provider

  • 25+ families connected
  • Specialises in Allied health

Based in New South Wales, New South Wales, Flexile Physiotherapy is an NDIS registered provider. They have supported participants with ehlers-danlos syndrome. They have a track record of following through on more than 25 enquiries from families who connected through Carevo. Allied health are among their most-requested supports.

How this listing is sourced

Arranged an appointment on Friday

Verified care seeker, Camberwell

NDIS coverage1 groupNDIS registration groupsTherapeutic Supports
0432388535
Supports ehlers-danlos syndrome on Carevo
3

Strathfield South, NSW and 314 othersAlso servesAbbotsford, NSW · Alexandria, NSW · Allambie Heights, NSW · Annandale, NSW · Arncliffe, NSW · Artarmon, NSW · Ashbury, NSW · Ashfield, NSW · Asquith, NSW · Auburn, NSW · Avalon Beach, NSW · Balgowlah, NSW · +302 more · Hyperlocal provider

  • Fast responder, usually replies within an hour
  • Specialises in Allied health

Based in New South Wales, New South Wales, Physihome is an NDIS registered provider. Allied health are among their most-requested supports. They have supported participants with ehlers-danlos syndrome. Most enquiries to them come from families and carers.

How this listing is sourced

NDIS coverage1 groupNDIS registration groupsTherapeutic Supports
0416893367
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Supports ehlers-danlos syndrome on Carevo
4

Sydney, NSW and 6 othersAlso servesByford, WA · Ellenbrook, WA · Kalgoorlie, WA · Midland, WA · Perth, WA · Yokine, WA · Regional provider

  • 5+ families connected
  • Specialises in Cleaning, Personal care

Based in New South Wales, New South Wales, The People Care Services is an NDIS registered provider. Most enquiries to them come from participants directly. Cleaning and personal care are among their most-requested supports. Registered across 8 NDIS support categories, including transport assistance, household tasks and community participation.

How this listing is sourced

NDIS coverage8 groupsNDIS registration groupsAssistance with travel/transport arrangements · Household tasks · Participation in community/social and civic activities · Development of daily living and life skills · High Intensity Daily Personal Activities · Daily Personal Activities · Community nursing care for high needs · Assistance with daily life tasks in a group or shared living arrangement
0439532801
Supports ehlers-danlos syndrome on Carevo
5

Leichhardt, NSW and 7 othersAlso servesBlacktown, NSW · Fairfield, NSW · Haberfield, NSW · Liverpool, NSW · Marrickville, NSW · Parramatta, NSW · Sydney, NSW · Regional provider

  • 10+ families connected
  • Specialises in Allied health

Health Society is an NDIS registered and aged care approved provider in New South Wales, New South Wales. They have a track record of following through on more than 15 enquiries from families who connected through Carevo. Families most often connect with them for allied health. Support coordinators often connect their participants with them.

How this listing is sourced

NDIS coverage1 groupNDIS registration groupsTherapeutic Supports
(02) 7227 9893
Supports ehlers-danlos syndrome on Carevo
6

Georges Hall, NSW and 12 othersAlso servesAshfield, NSW · Bankstown, NSW · Belmore, NSW · Central Coast, NSW · Condell Park, NSW · Greenacre, NSW · Liverpool, NSW · Parramatta, NSW · Punchbowl, NSW · Revesby, NSW · Sydney, NSW · Wiley Park, NSW · State-wide provider

  • 25+ families connected
  • Fast responder, usually replies within 2 hours
  • Specialises in Cleaning, Nursing

Kare 4 works across 10 NDIS support categories in New South Wales, New South Wales. Most enquiries to them come from families and carers. They have a track record of following through on more than 30 enquiries from families who connected through Carevo. They are most often contacted for cleaning and nursing.

How this listing is sourced

NDIS coverage10 groupsNDIS registration groupsAssistance with travel/transport arrangements · Group and Centre Based Activities · Daily Personal Activities · Specialist Disability Accommodation · Innovative Community Participation · Development of daily living and life skills · Assistance in Coordinating or Managing Life Stages, Transitions and Supports · Household tasks · Assistance with daily life tasks in a group or shared living arrangement · Participation in community/social and civic activities
0450909694
Supports ehlers-danlos syndrome on Carevo
7

Oyster Bay, NSW · Hyperlocal provider

  • Fast responder, usually replies within an hour
  • Specialises in Physiotherapy, Therapy, Exercise Physiology

Based in New South Wales, New South Wales, Sutherland Shire Paediatric Physiotherapy is an NDIS registered provider. Active on Carevo in the past week. They focus closely on their local area. They typically respond to enquiries quickly.

How this listing is sourced

NDIS coverage1 groupNDIS registration groupsTherapeutic Supports
0480 589 772
Supports ehlers-danlos syndrome on Carevo
8

Beverley Park, NSW and 21 othersAlso servesAllawah, NSW · Bexley, NSW · Blakehurst, NSW · Brighton-le-Sands, NSW · Carlton, NSW · Carss Park, NSW · Connells Point, NSW · Dolls Point, NSW · Hurstville, NSW · Kogarah, NSW · Kogarah Bay, NSW · Monterey, NSW · +9 more · Hyperlocal provider

  • Fast responder, usually replies within an hour
  • Specialises in Allied Health, Exercise Physiology, Occupational Therapy

Based in New South Wales, New South Wales, Vezba Exercise Physiology is an NDIS registered provider. Active on Carevo in the past week. They focus closely on their local area. They typically respond to enquiries quickly.

How this listing is sourced

NDIS coverage2 groupsNDIS registration groupsExercise Physiology and Physical Wellbeing Activities · Therapeutic Supports
0280060067
Supports ehlers-danlos syndrome on Carevo
9

Luddenham, NSW and 6 othersAlso servesCentral Coast, NSW · Newcastle, NSW · Parramatta, NSW · Regentville, NSW · Sydney, NSW · Taree, NSW · State-wide provider

  • 25+ families connected
  • Specialises in Personal care, Cleaning, Allied health

Royale Gateways works across 14 NDIS support categories in New South Wales, New South Wales. They operate across New South Wales. They have a track record of following through on more than 40 enquiries from families who connected through Carevo. They are most often contacted for personal care and cleaning.

How this listing is sourced

NDIS coverage14 groupsNDIS registration groupsAssistance to access and/or maintain employment and/or education · Participation in community/social and civic activities · Development of daily living and life skills · Household tasks · Daily Personal Activities · Specialised Supported Employment · Innovative Community Participation · Assistance with travel/transport arrangements · Assistance with daily life tasks in a group or shared living arrangement · Therapeutic Supports · High Intensity Daily Personal Activities · Assistance in Coordinating or Managing Life Stages, Transitions and Supports · Community nursing care for high needs · Group and Centre Based Activities
+61 451 633 392
Supports ehlers-danlos syndrome on Carevo
10

South Granville, NSW · Regional provider

  • Specialises in Allied health, Personal care

Tender Love & Care works across 6 NDIS support categories in New South Wales, New South Wales. They are most often contacted for allied health and personal care.

How this listing is sourced

NDIS coverage6 groupsNDIS registration groupsDevelopment of daily living and life skills · Assistance with travel/transport arrangements · Assistance with daily life tasks in a group or shared living arrangement · Participation in community/social and civic activities · Group and Centre Based Activities · Daily Personal Activities
0421140064

How we rank providers

Rankings in New South Wales are based on real outcomes between providers and families on our platform. They are recalculated daily and cannot be purchased or influenced by advertising.

  • How this list is built. Providers shown here offer physiotherapy, occupational therapy, allied health, personal care, support work, and nursing, the support types most relevant to ehlers-danlos syndrome. They are then ranked by demonstrated experience with ehlers-danlos syndrome, providers who have actively claimed and supported ehlers-danlos syndrome referrals rank above those who only list it as a capability.
  • Outcomes with families. We measure what happens after a family contacts a provider. Providers where families report positive outcomes rank higher. Multiple signals are weighted across a rolling window.
  • Condition-specific track record. Providers who have accepted and worked with ehlers-danlos syndrome referrals on Carevo rank above those who only list the condition as a capability. We weight providers using their demonstrated experience with this cohort, not self-declared specialisations.
  • Service match. Providers are ranked by how closely their registered services and capabilities match what you are searching for.
  • Registration and compliance. NDIS registered and government-approved aged care providers are weighted for meeting quality and safeguards standards.
  • Local presence. Providers confirmed in New South Wales rank above those covering only the broader region.

What "Trusted" means. The Trusted badge is awarded to providers with a consistent record of positive outcomes with families on our platform. It is based on multiple behavioural signals and family feedback, and it cannot be purchased.

32,167

providers in New South Wales

How we calculate provider numbers

What "Verified care seeker" means. Any care-seeker feedback shown above is from a real person who used Carevo to connect with that provider and then told us how it went. We only publish feedback tied to a genuine, matched enquiry, never anonymous, unsolicited, or paid reviews.

Ehlers-Danlos Syndrome support across New South Wales

Ehlers-Danlos syndrome is a group of hereditary connective tissue disorders causing joint hypermobility, skin fragility, chronic pain, and frequent dislocations. People with hypermobile or classical EDS may qualify for NDIS when their functional limitations are permanent and substantial. Physiotherapy, occupational therapy, and personal care are commonly funded supports for managing the daily impacts of EDS.

Carevo lists 9478 NDIS providers supporting ehlers-danlos syndrome with active coverage across New South Wales. Compare their response times and registration below, or narrow to your suburb.

Services to compare first for Ehlers-Danlos Syndrome

How to check a provider's credentials

Carevo lists the registration details a provider reports and links you to the official Australian registers so you can confirm them yourself. Here is what each listing shows and where to check it. A listing on Carevo is not an endorsement.

NDIS registration

Listings show whether a provider reports being NDIS registered. You can confirm a provider's current registration and approved support types yourself on the NDIS Commission's public provider register.

Source: NDIS Quality and Safeguards Commission

Aged care approval

Listings show aged care approval where it is recorded. You can check a provider's current approval and the services they deliver on the Australian Government's My Aged Care find a provider service.

Source: My Aged Care (Department of Health and Aged Care)

ABN you can check

Most listings include the provider's Australian Business Number, shown on the profile. You can look it up on the Australian Business Register to confirm the business is registered and active.

Source: Australian Business Register

Complaints process

If you have a concern about any provider, you can lodge a complaint with the NDIS Commission or the Aged Care Quality and Safety Commission at any time. We also accept complaints via our own channel.

Source: NDIS Commission / Aged Care Commission

Understanding Ehlers-Danlos Syndrome (EDS)

Ehlers-Danlos syndrome (EDS) is a group of inherited connective tissue disorders affecting collagen, the main structural protein in the body. It affects an estimated 1 in 5,000 Australians, though hypermobile EDS (the most common type) is likely significantly underdiagnosed. EDS causes joint hypermobility, chronic pain, frequent dislocations and subluxations, fragile skin, fatigue, and autonomic dysfunction. The most common type, hypermobile EDS (hEDS), is characterised by generalised joint hypermobility, chronic pain, and fatigue. Other types (vascular, classical, kyphoscoliotic) have additional features including fragile blood vessels, elastic skin, and spinal curvature. EDS is a multi-system condition that affects far more than joints. Many people also experience gastrointestinal problems, mast cell activation, postural orthostatic tachycardia syndrome (POTS), and cranio-cervical instability. The NDIS funds support for people whose EDS causes permanent and significant functional impairment.

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Frequently Asked Questions

Does Ehlers-Danlos syndrome qualify for NDIS in New South Wales?

EDS can qualify for NDIS when it causes permanent and substantial functional limitations, which is common in moderate to severe cases involving chronic pain, frequent dislocations, and reduced mobility. Providing detailed functional evidence from treating specialists and allied health professionals strengthens an NDIS access request in New South Wales. Carevo connects EDS participants in New South Wales (NSW) with support coordinators experienced in complex connective tissue conditions.

What physiotherapy supports are available through NDIS for EDS in New South Wales?

NDIS-funded physiotherapy for EDS in New South Wales focuses on joint stabilisation, pain management, proprioception training, and safe movement to reduce dislocation risk. Physiotherapists with EDS experience use low-impact approaches that avoid overstretching hypermobile joints. Carevo helps participants in New South Wales (NSW) find physiotherapists who understand EDS and can deliver home-based or clinic sessions.

Can NDIS fund assistive technology for joint protection with EDS in New South Wales?

Yes, NDIS can fund assistive technology for people with EDS in New South Wales including bracing, orthotics, mobility aids, and home modification equipment to reduce joint injury risk. An occupational therapist or physiotherapist assessment is required to justify these items as reasonable and necessary. Carevo connects participants in New South Wales (NSW) with OTs who specialise in assistive technology assessments for hypermobility conditions.

How does NDIS support pain management for EDS in New South Wales?

NDIS does not directly fund pain medication but supports in New South Wales such as occupational therapy, exercise physiology, physiotherapy, and psychology can help participants manage chronic EDS pain and improve quality of life. A well-structured plan addresses both physical management and psychological wellbeing. Carevo lists allied health and psychology providers in New South Wales (NSW) who work with chronic pain and hypermobility disorders.

Can I get a support worker to help with daily tasks affected by EDS in New South Wales?

NDIS support workers can assist people with EDS in New South Wales with personal care, household tasks, and community access on days when pain or joint instability limits independence. Flexible rostering is important to accommodate EDS symptom variability. Carevo connects participants across New South Wales (NSW) with support workers who can adapt to the fluctuating needs associated with EDS.

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