Epilepsy support in Newcastle, NSW
Compare local providers and the support types that usually matter for epilepsy. Skip the generic directory listings, get a real shortlist.
For epilepsy
- 2 providers with epilepsy experience in Newcastle
- Matched to the support types that fit epilepsy
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Best Epilepsy specialists near me
2 experienced with Epilepsy · 8 other registered providers·How we chose these
Newcastle, NSW and 124 othersAlso servesAlbury, NSW · Armidale, NSW · Auburn, NSW · Ballina, NSW · Bankstown, NSW · Banora Point, NSW · Bass Hill, NSW · Bathurst, NSW · Baulkham Hills, NSW · Bega, NSW · Belconnen, ACT · Berkeley, NSW · +112 more · National provider
- 50+ families connected
- Fast responder, usually replies within 2 hours
- Specialises in Personal care, Cleaning
Newcastle, NSW and 6 othersAlso servesCentral Coast, NSW · Cessnock, NSW · Lake Macquarie, NSW · Maitland, NSW · Raymond Terrace, NSW · Thornton, NSW · State-wide provider
- 10+ families connected
- Specialises in Nursing, Personal care
Alana Care Support Services works across 10 NDIS support categories in Newcastle, New South Wales. They are most often contacted for nursing and personal care. They have a track record of following through on more than 15 enquiries from families who connected through Carevo. They have supported participants with epilepsy.
How this listing is sourced
- Registered with the NDIS Quality & Safeguards Commission
- Business address on file
Other registered providers in Newcastle
Registered in Newcastle with no demonstrated Epilepsy track record on Carevo — listed for completeness, not as Epilepsy specialists.
Newcastle, NSW and 77 othersAlso servesACT Remainder - Kowen, ACT · ACT Remainder - Paddys River, ACT · Acton, ACT · Armadale, WA · Auburn, NSW · BELMORE, NSW · Bankstown, NSW · Baulkham Hills, NSW · Berala, NSW · Blacktown, NSW · Bowral, NSW · Burwood, NSW · +65 more · National provider
- 50+ families connected
- Specialises in Cleaning, Gardening
Glow Health Care Australia works across 27 NDIS support categories in Newcastle, New South Wales. Most enquiries to them come from participants directly. They have a track record of following through on more than 50 enquiries from families who connected through Carevo. They are most often contacted for cleaning and gardening.
How this listing is sourced
- Registered with the NDIS Quality & Safeguards Commission
- Approved Aged Care provider (Department of Health)
- Business address on file
- Team includes Developmental Educators, Disability Support Worker, Social Worker
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Newcastle, NSW and 40 othersAlso servesAuburn, NSW · Blacktown, NSW · Bondi, NSW · Bondi Junction, NSW · Brooklyn, NSW · Burwood, NSW · Campbelltown, NSW · Castle Hill, NSW · Central Coast, NSW · Charlestown, NSW · Concord West, NSW · Cronulla, NSW · +28 more · State-wide provider
- 10+ families connected
- Fast responder, usually replies within 2 hours
- Specialises in SIL, Transport, Social support
Based in Newcastle, New South Wales, Ally Aid is an NDIS registered provider. SIL and transport are among their most-requested supports. They have a track record of following through on over a dozen enquiries from families who connected through Carevo. Most enquiries to them come from families and carers.
How this listing is sourced
- Registered with the NDIS Quality & Safeguards Commission
- Business address on file
Newcastle, NSW and 27 othersAlso servesAuburn, NSW · Bankstown, NSW · Bass Hill, NSW · Blacktown, NSW · Burwood, NSW · Campbelltown, NSW · Castle Hill, NSW · Central Coast, NSW · Dee Why, NSW · Fairfield, NSW · Five Dock, NSW · Gosford, NSW · +15 more · Regional provider
- 10+ families connected
- Fast responder, usually replies within an hour
- Specialises in Allied health
Based in Newcastle, New South Wales, The Allied Health Clinic is an NDIS registered provider. Allied health are among their most-requested supports. They have a track record of following through on more than 15 enquiries from families who connected through Carevo. Most enquiries to them come from families and carers.
How this listing is sourced
- Registered with the NDIS Quality & Safeguards Commission
- Business address on file
Brilliant service Dr Said had a wonderful manner with my father (& me) and made such a difference with great recommendations for ongoing care
Verified care seeker, Lane Cove
Newcastle, NSW and 19 othersAlso servesAlbury, NSW · Bankstown, NSW · Bega, NSW · Campbelltown, NSW · Castle Hill, NSW · Central Coast, NSW · Goulburn, NSW · Liverpool, NSW · Mount Druitt, NSW · Nowra, NSW · Orange, NSW · Penrith, NSW · +7 more · State-wide provider
- 10+ families connected
- Fast responder, usually replies within an hour
- Specialises in Personal care, Transport, Cleaning
Crescent Care (Aus) works across 16 NDIS support categories in Newcastle, New South Wales. They support both NDIS and aged care funding. They are most often contacted for personal care and transport. Most enquiries to them come from participants directly.
How this listing is sourced
- Registered with the NDIS Quality & Safeguards Commission
- Business address on file
Newcastle, NSW and 12 othersAlso servesCessnock, NSW · Charlestown, NSW · Kurri Kurri, NSW · Lake Macquarie, NSW · Lambton, NSW · Maitland, NSW · Mayfield, NSW · Medowie, NSW · Raymond Terrace, NSW · Rutherford, NSW · Wallsend, NSW · Warners Bay, NSW · Regional provider
- Specialises in Advocacy, Cleaning
Care Alliance Allied Health & Supports works across 12 NDIS support categories in Newcastle, New South Wales. They have a strong record of following through with families who reach out through Carevo. They are most often contacted for advocacy and cleaning. Active on Carevo in the past week.
How this listing is sourced
- Registered with the NDIS Quality & Safeguards Commission
- Business address on file
Newcastle, NSW and 211 othersAlso servesAirds, NSW · Albion Park, NSW · Albion Park Rail, NSW · Allambie Heights, NSW · Allawah, NSW · Armidale, NSW · Arncliffe, NSW · Auburn, NSW · Balgowlah, NSW · Balgowlah Heights, NSW · Ballina, NSW · Bankstown, NSW · +199 more · National provider
- 25+ families connected
- Specialises in Cleaning, Gardening
Residence Revival is an NDIS registered provider serving Newcastle, New South Wales. They operate across multiple states. They have a track record of following through on more than 40 enquiries from families who connected through Carevo. They are most often contacted for cleaning and gardening.
How this listing is sourced
- Registered with the NDIS Quality & Safeguards Commission
- Business address on file
Newcastle, NSW and 28 othersAlso servesAdamstown, NSW · Belmont, NSW · Broadmeadow, NSW · Cardiff, NSW · Central Coast, NSW · Cessnock, NSW · Charlestown, NSW · Edgeworth, NSW · Eleebana, NSW · Glendale, NSW · Greta, NSW · Hamilton, NSW · +16 more · State-wide provider
- 5+ families connected
- Specialises in Transport, Advocacy, SIL
Lumawell Care Group is an NDIS registered provider in Newcastle, New South Wales. Families most often connect with them for transport and advocacy. Support coordinators often connect their participants with them. Registered across 7 NDIS support categories, including daily personal care, daily living skills and community participation.
How this listing is sourced
- Registered with the NDIS Quality & Safeguards Commission
- Business address on file
Newcastle, NSW and 43 othersAlso servesAdelaide, SA · Ballina, NSW · Banora Point, NSW · Blacktown, NSW · Bondi Junction, NSW · Brisbane, QLD · Brisbane City, QLD · Byron Bay, NSW · Campbelltown, NSW · Central Coast, NSW · Chisholm, NSW · Coolamon, NSW · +31 more · National provider
- 10+ families connected
- Fast responder, usually replies within an hour
- Specialises in SIL, Personal care
Admire Disability Services works across 8 NDIS support categories in Newcastle, New South Wales. Support coordinators often connect their participants with them. They have a track record of following through on more than 20 enquiries from families who connected through Carevo. They are most often contacted for SIL and personal care.
How this listing is sourced
- Registered with the NDIS Quality & Safeguards Commission
- Business address on file
- Team includes Disability Support Worker
How we rank providers
Rankings in Newcastle are based on real outcomes between providers and families on our platform. They are recalculated daily and cannot be purchased or influenced by advertising.
- How this list is built. Providers shown here offer nursing, support work, personal care, allied health, therapy, and psychology, the support types most relevant to epilepsy. They are then ranked by demonstrated experience with epilepsy, providers who have actively claimed and supported epilepsy referrals rank above those who only list it as a capability.
- Outcomes with families. We measure what happens after a family contacts a provider. Providers where families report positive outcomes rank higher. Multiple signals are weighted across a rolling window.
- Condition-specific track record. Providers who have accepted and worked with epilepsy referrals on Carevo rank above those who only list the condition as a capability. We weight providers using their demonstrated experience with this cohort, not self-declared specialisations.
- Service match. Providers are ranked by how closely their registered services and capabilities match what you are searching for.
- Registration and compliance. NDIS registered and government-approved aged care providers are weighted for meeting quality and safeguards standards.
- Local presence. Providers confirmed in Newcastle rank above those covering only the broader region.
What "Trusted" means. The Trusted badge is awarded to providers with a consistent record of positive outcomes with families on our platform. It is based on multiple behavioural signals and family feedback, and it cannot be purchased.
10
providers in Newcastle
32,111
providers nationally
What "Verified care seeker" means. Any care-seeker feedback shown above is from a real person who used Carevo to connect with that provider and then told us how it went. We only publish feedback tied to a genuine, matched enquiry, never anonymous, unsolicited, or paid reviews.
What people with Epilepsy in Newcastle usually need help with
Epilepsy is a neurological condition characterised by recurrent seizures. People with epilepsy who experience significant functional impact may access NDIS supports including nursing care, personal care, support workers, and seizure management training. Not all seizures look the same, and providers who work with people with epilepsy should have up-to-date seizure first aid training and a clear Seizure Management Plan on file before they start working with a new participant.
For chronic and complex medical conditions, the best starting point is usually identifying whether the main need is nursing, personal care, therapy, or a flexible combination, then comparing local providers who can adjust support when symptoms change.
What people usually compare locally
- • Availability of nursing or clinical staff with experience in the specific condition
- • Flexibility to adjust support at short notice during symptom changes
- • Coordination with local GPs, specialists, and hospital services
- • Whether the provider can deliver both personal care and clinical support through one service
Services and providers to compare first in Newcastle
For chronic and complex medical conditions, nursing support and flexible personal care are usually the first services to compare. Focus on providers who understand symptom variability and can adjust support accordingly. Use the service links below to pressure-test provider fit, not just to browse every option in the area.
The Epilepsy provider network on Carevo
40 providers on Carevo have supported people with epilepsy through real matched requests.36 are registered NDIS providers. Matching is based on real provider history, not self-described claims.
Supports they provide
- • Support workers
- • Personal care
- • Nursing
- • Therapy
- • Allied health
Where providers are
Providers experienced with epilepsy are listed in more than 380 suburbs across Queensland, New South Wales, Western Australia, Victoria, and other states.
Often supported alongside
Providers who support epilepsy most often also have experience with Autism, Psychosocial Disability, ADHD, Incontinence, and PTSD.
About Newcastle, NSW
Population
2,753
Local government area
Newcastle (City)
Providers listed
10
Newcastle sits within the Newcastle (City) local government area in NSW. Providers serving this area often cover surrounding suburbs in the same LGA, so it is worth checking neighbouring areas if you cannot find an exact match.
How to check a provider's credentials
Carevo lists the registration details a provider reports and links you to the official Australian registers so you can confirm them yourself. Here is what each listing shows and where to check it. A listing on Carevo is not an endorsement.
NDIS registration
Listings show whether a provider reports being NDIS registered. You can confirm a provider's current registration and approved support types yourself on the NDIS Commission's public provider register.
Source: NDIS Quality and Safeguards CommissionAged care approval
Listings show aged care approval where it is recorded. You can check a provider's current approval and the services they deliver on the Australian Government's My Aged Care find a provider service.
Source: My Aged Care (Department of Health and Aged Care)ABN you can check
Most listings include the provider's Australian Business Number, shown on the profile. You can look it up on the Australian Business Register to confirm the business is registered and active.
Source: Australian Business RegisterComplaints process
If you have a concern about any provider, you can lodge a complaint with the NDIS Commission or the Aged Care Quality and Safety Commission at any time. We also accept complaints via our own channel.
Source: NDIS Commission / Aged Care CommissionCare Services Available in Newcastle
Provider counts by service type in Newcastle
* Services commonly accessed for this condition
What happens after you request support in Newcastle
1. Identify clinical and daily needs
Work out whether the main gaps are nursing or clinical support, personal care during difficult periods, therapy, or help managing daily routines around variable symptoms.
2. Compare flexible providers
Look for providers who can adjust support hours and intensity when symptoms change. Compare how they coordinate with your medical team and handle urgent or unplanned needs.
3. Confirm medical coordination
Ask how the provider communicates with your GP or specialist, whether nursing staff are available, and what happens if you need to increase or pause support at short notice.
For NDIS participants with chronic conditions, confirm whether the provider can coordinate with your medical team, adjust support hours during flare-ups, and provide nursing or clinical staff when needed.
Newcastle at a glance
Nearest hospital
John Hunter Hospital
Public transport
Newcastle Light Rail
Pharmacies
Chemist Warehouse Hunter Street • Priceline Pharmacy Newcastle
Community support
Newcastle Senior Citizens Centre • Hunter Multicultural Communities
Former steel city reinventing itself. University town. Strong surf culture. Growing healthcare and tourism sectors.
Beach has accessible facilities. Light rail is fully accessible. Some steep streets in older suburbs.
Frequently Asked Questions
Does epilepsy qualify for the NDIS?
Epilepsy can qualify for the NDIS when seizures are not fully controlled by treatment and the condition substantially affects daily life, for example needing supervision for safety, support after seizures, or help getting into the community. The NDIS looks at functional impact, not the diagnosis alone, so an access request should include evidence from your neurologist or GP about seizure frequency, treatments tried, and what you need help with day to day. Well-controlled epilepsy with little functional impact usually does not meet the criteria on its own.
Can the NDIS fund support workers and safety equipment for epilepsy in Newcastle?
NDIS participants with epilepsy in Newcastle may access funding for support workers who are trained in seizure management, safety equipment, assistive technology, and community participation support. Carevo connects participants and carers in Hunter & Newcastle with providers experienced in supporting people with epilepsy.
Can I get NDIS funding if my epilepsy is controlled by medication in Newcastle?
If medication fully controls your seizures with no residual functional impact, you may not meet NDIS eligibility. However, many people with epilepsy in Newcastle experience breakthrough seizures, medication side effects, driving restrictions, or cognitive impacts that significantly affect daily life. Your neurologist can document these functional limitations to support your NDIS access request.
How do I find a support worker trained in seizure management in Newcastle?
Carevo lists support workers in Newcastle who are trained in seizure first aid and epilepsy management. Look for providers with relevant training and experience. All support workers should have current first aid certification including seizure response.
What nursing support is available for epilepsy through the NDIS in Newcastle?
NDIS-funded nurses in Newcastle can assist with medication management, seizure monitoring, emergency seizure response plans, and health assessments for people with epilepsy. Nursing visits can be scheduled regularly or as needed. Carevo lists nursing providers experienced with epilepsy in Hunter & Newcastle.
What assistive technology is available for epilepsy through the NDIS?
NDIS participants with epilepsy in Newcastle may access seizure detection monitors, medical alert systems, protective headgear, and bed sensors. An occupational therapist or neurologist can recommend appropriate devices, which may be funded through your assistive technology budget.
Understanding Epilepsy
Epilepsy is a neurological condition characterised by recurrent, unprovoked seizures caused by abnormal electrical activity in the brain. It affects an estimated 151,000 Australians, around 0.6% of the population (AIHW, Epilepsy in Australia, based on the ABS 2017-18 National Health Survey). Seizures vary enormously: some people experience brief absence seizures that last a few seconds, while others have tonic-clonic seizures involving loss of consciousness and convulsions. Epilepsy is often well managed with medication, but around 30% of people have drug-resistant epilepsy that continues to cause seizures despite treatment. For those with significant functional impact, the NDIS provides support including nursing care, support workers, safety equipment, and therapy. The condition does not just affect the moments of a seizure. The fear of when the next one will happen, driving restrictions, employment limitations, medication side effects, and memory difficulties can all have a major effect on quality of life.
How epilepsy affects daily life
Epilepsy affects daily life through the seizures themselves and through the restrictions they create. Many people cannot drive, which limits employment and independence. The unpredictability of seizures creates anxiety about being alone, particularly during activities like bathing, cooking, or swimming. Post-seizure recovery can take hours or days. Medication side effects often include fatigue, cognitive slowing, and mood changes. Memory and concentration difficulties are common even between seizures. For people with drug-resistant epilepsy, the daily impact can be severe, requiring someone nearby at all times for safety.
What to look for in a provider
Good epilepsy providers ensure that every worker supporting the person has current seizure first aid training and access to the person's Seizure Management Plan. Ask how they train their staff on seizure types (not all seizures look like convulsions), whether they can manage emergency medication (like midazolam), and how they balance safety with independence. Red flags include providers who have no seizure management protocol, whose workers have not received epilepsy-specific training, or who respond to seizure risk by restricting activities rather than managing risk proportionally.
How to access funding
Epilepsy is on the NDIS List B, requiring evidence of permanent and significant functional impairment. A neurologist's report documenting the seizure type, frequency, and functional impact is the primary evidence needed. Well-controlled epilepsy with no residual functional impact is unlikely to meet NDIS criteria, but drug-resistant epilepsy with associated risks, restrictions, and secondary effects usually does. Plans are reviewed annually. Epilepsy Action Australia can provide guidance on the NDIS access process and connecting with support services.
Sources: AIHW, Epilepsy in Australia · NDIS Access Operational Guideline, List B conditions
Need help with NDIS for Epilepsy? A support coordinator can help you find the right providers and get the most from your plan. Find support coordinators in Newcastle
Funding and costs for epilepsy support in Newcastle
Lower
$10,000
per year
Typical
$35,000
per year
Higher
$120,000+
per year
Plan size depends on seizure frequency and severity, whether 24/7 supervision is needed, medication complexity, and whether epilepsy occurs alongside other conditions like intellectual disability or brain injury.
Illustrative ranges only. An individual plan is set by the NDIA on assessed need, not by diagnosis, and varies widely. Pricing basis: NDIS Pricing Schedule 2026-27.
Seizure detection monitors and alert systems cost $200-$2,000+. Nursing visits for medication management are billed at $75-$120/hr. Support worker rates start around $55-$65/hr on weekdays.
Figures are indicative and based on the current NDIS Price Guide and published Home Care Package rates. Actual costs depend on your plan, provider, and location.
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